I haven't really said much about my daughter's disability (she has verbal dyspraxia), but I wanted to link to a post I found that sums up pretty well what many parents of children with special needs feel.
First of all, please read this short piece called Welcome to Holland. I first read this a couple of years ago and thought it was very true. I never expected to have a child with special needs, but I have and she's just as wonderful as my child without. I just wasn't planning on it.
Then I came across this post - Amsterdam International. While I love Welcome to Holland, I think I have to agree with the author of Amsterdam International; it's not an easy journey by any means. I think this is a very honest portrayal of what it is to be a special needs parent. I hope it helps someone out there who may just be starting out on this exhausting, emotional, scary but ultimately wonderful and loving journey.